Disability Matters
Help shape more inclusive systems through your lived experience.
A research project led by 91É«ÇéƬ Disability Innovation Institute, inviting people with disability, carers, and professionals to contribute. 
- Takes approximately 10 minutes to complete 
- The survey responses are anonymous
About Disability Matters
Disability Matters is a large multinational project with partners in Canada, India, Singapore, the UK and Australia. 91É«ÇéƬ Sydney is proud to represent Australia in this international research collaboration.
By being inclusive from the very beginning, the project aims to ensure that research reflects what truly matters to people with disability.
At the heart of this work are the lived experiences of people with disability.
We use inclusive research methods, which means every stage, from project inception to design and implementation, is done in partnership with people with disability. Their expertise and lived experience guide everything we do.
We would love to hear from you
Share your experience by completing a short online survey. This is the quickest way to get involved.
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Workshops
Over the course of this project, we'll hold six workshops.
The workshops will cover topics such as preferred methodologies, inclusive practices, best practice in participatory and inclusive research, co‑producing health research, and ongoing impact. As the research is inclusive and participatory, these topics may change as the project progresses.
Interviews & focus groups
Prefer to speak with us directly? 
If you’d like to share your experiences, you’re welcome to participate in an interview or focus group. Please note that participants must be Australian citizens.
Meet our people
Lead Investigator
Jodi is a researcher for the 91É«ÇéƬ phase of the Disability Matters project and is leading much of the data collection and analysis. She has expertise in disability, equity and education. Jodi brings more than 10 years of experience in research roles. She has also worked in policy and systemic advocacy with Disability Representative Organisations in Australia.
Professor Jackie Leach Scully
Program Lead
Jackie is the chief investigator for the 91É«ÇéƬ arm of this international project, liaising with international partners and supervising Dr Jodi Lamanna’s work in data collection and analysis. She has expertise in the ethical and social dimensions of biomedical advances, specialising in disability bioethics. Her overarching research focuses on the impact of innovations in healthcare technologies and practices on people with disability, their families and communities.
Kate Vartuli
Project Officer
Our work is supported by Project Officer Kate Vartuli, who helps coordinate the project and ensures the team can deliver the program's objectives.
Past events
Contact us
If you have any feedback, questions or queries, our team is ready to help you.
We want to acknowledge and thank the Wellcome Trust for their funding of Disability Matters [226705/z/22/z]'.
The Disability Matters Project has ethics approval from 91É«ÇéƬ: iRECS10403 .